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Our community is growing every day. Join the RUNX1 Research Program and others affected by RUNX1-FPD on RareConnect. This secure platform allows you to ask questions and seek support from fellow patients and the RRP.

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Help us do more

The RUNX1 Research Program aims to increase awareness of RUNX1-FPD both in the general public and medical communities, and to provide grants for groundbreaking research projects in the hope of finding a cure. Please spread the word about us and that inherited blood cancers do exist.  

 

 

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100% of your donation goes toward funding research, patient and clinician education programs with administrative costs covered by the RUNX1 Research Program.

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A million small efforts can make a great difference. Use our Amazon Smile link whenever you shop, and Amazon will donate a portion of the proceeds to the RUNX1 Research Program.

 
 

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Breaking New Ground

The NIH has just initiated the first-ever longitudinal natural history study of RUNX1-FPD patients, with the aim of better understanding the clinical features of the disease, how these may relate to the different germline mutations and why some patients progress to blood cancer and others do not. This is a groundbreaking study and essential in our effort to find a cure.