RUNX1 Patient & Family Coffee Chats

A peer support group for the RUNX1-FPD community

Coffee chats are casual, small-group video calls for individuals with RUNX1-FPD and their family members.

Some things are easier to talk about with people who already understand. Coffee chats are casual, small-group video calls where individuals with RUNX1-FPD and their family members can connect, share what's on their minds, and learn from one another's experiences.

Each chat is hosted by the RUNX1 Research Program (RRP), and the conversation belongs to the people in the room. Some sessions center on a topic the community has asked about, and others are open conversation. Coffee chats are a space for peer connection and shared experience. For medical questions, your care team remains your best resource.

You are welcome whether you learned about RUNX1-FPD last month or have lived with it for decades. Join with your camera on or off, share as much or as little as you like, and come as often as you want.

Upcoming RUNX1 Patient & Family Coffee Chats

We rotate coffee chat times so that people in different time zones, and with different schedules and commitments, can find a session that works for them. Here are this year's dates.

  • Thursday, Nov 5, 2026

    9:00 AM PT / 12:00 PM ET / 5:00 PM GMT

    Register

Don't see a time that works where you live? Let us know. We schedule sessions for other time zones a few times a year, and your suggestions help us decide when to hold them.

How to join

Choose a date above and register through the link. Once your registration is approved, you'll receive a Zoom link by email, and we'll send a reminder the day before.

Questions, or have an idea for a future chat? Contact Amanda Eggen at aeggen@runx1-fpd.org.