As we begin 2026, we want to thank you for your continued engagement and support of RRP’s mission. Because of your generosity, we reached and exceeded our 2025 year-end awareness campaign goal!
In this month’s newsletter, we introduce the new RUNX1 Insight Drops, highlight a new patient-centered clinical resource, share a call for abstracts with an upcoming submission deadline, and provide other updates from across RRP.
Thanks to the incredible generosity of RRP community members during our 2025 year-end awareness campaign, we raised a little over $32,000.
And, with the addition of a generous anonymous matching gift, we achieved a combined total of just over $64,000!
100% of these funds will be used to support vital research and patient-focused initiatives.
As we move into 2026, we’re excited to continue navigating new frontiers focused on creating real-world solutions for RUNX1-FPD patients. Thank you for being an essential part of our community.
As part of our ongoing commitment to education and awareness, we’re kicking off 2026 with this medical education opportunity.
This webinar will explore the germline origins of pediatric hematologic malignancies and offer practical guidance for identifying, managing, and referring children with potential hereditary hematologic conditions.
The session will feature a presentation by Serine Avagyan, MD, PhD (UCSF), followed by a Q&A with Jessica Pollard, MD (Dana-Farber/Boston Children’s Cancer and Blood Disorders Center), and genetic counselor Sara Torres-Esquius, MS, CGC (Vall d’Hebron Institute of Oncology, Barcelona).
Call For Abstracts: 10th Annual RUNX1 Scientific Conference Poster Session
Abstract Submissions Due: Friday, February 27, before 3 p.m. PT
We invite all researchers to submit abstracts for consideration in the poster session at the 10th Annual RUNX1 Scientific Conference, taking place May 6–7, 2026, in Atlanta, Georgia.
Pending available funding, travel scholarships will be offered to graduate students and postdoctoral fellows whose abstracts receive the highest rankings from our scientific program reviewers.
RUNX1 Insight Drops: Bite-sized Insights From The RUNX1 Patient Data Hub
December 1, 2025, marked the three-year anniversary of the launch of the RUNX1 Patient Data Hub. To celebrate this milestone, we’re introducing a new communications series: RUNX1 Insight Drops.
Each Insight Drop highlights a small set of patient-reported insights drawn directly from health experiences shared by RUNX1-FPD individuals in the Data Hub. Together, these drops offer an evolving snapshot of what life with RUNX1-FPD looks like across our community.
Click below to view the latest set of Insight Drops and check back often as new data are added.
2026 RUNX1 Patient Meeting Agenda Is Now Available
RUNX1-FPD patients and their families are invited to join us in Atlanta next spring for the 2026 RUNX1 Patient Meeting.
There is no registration fee, and RRP covers travel, lodging, and meals for individuals with RUNX1-FPD, all children traveling with them, and one close family member. We welcome both children with RUNX1-FPD and siblings without to attend and participate.
Click below to register and view the proposed agenda. We hope to see you there!
2026 RUNX1 Scientific Conference Agenda Is Now Available
The agenda for the 10th Annual RUNX1 Scientific Conference is now available online. This year’s program features scientific sessions, poster presentations from early-career researchers, and interactive networking opportunities.
Review this year’s topics and presenters, and register* to join us in Atlanta in May.
*If you are a current RRP grantee or Scientific Advisory Board (SAB) member, please contact Catherine Pelton at cpelton@runx1-fpd.org for a registration promo code.
New Resource for Bone Marrow Procedures
Patient comfort and diagnostic quality are closely linked. In collaboration with a nurse from Boston Children’s Hospital, we developed a clinical resource outlining practical strategies to optimize comfort during bone marrow aspiration and biopsy while maintaining high-quality diagnostic outcomes.
The guide addresses anesthesia and analgesia options, patient positioning, procedural pacing, and newer needle technologies, with a focus on supporting efficient, reliable sample collection.
This resource is intended to support clinicians in delivering consistent, patient-centered bone marrow procedures grounded in best practices.
None of the news you just read is possible without support from our generous donors. Please consider a gift of any size today. RRP commits 100% of direct donations to fund research and educational programs.
