The 2026 X-Out Blood Cancer campaign launches in April, and we hope you will join us in raising funds to support the research driving progress in RUNX1-FPD.
In the weeks ahead, we will share ways to participate, including how to launch your own peer-to-peer fundraiser to help expand the reach of this year’s campaign and raise much-needed funds.
Thank you for being part of the RRP community! There is no RRP without you.
This year’s X-Out Blood Cancer campaign will take you inside the science that your donations make possible.
Launching in April, we’ll introduce you to the investigators dedicated to preventing blood cancer in RUNX1-FPD and show how community-raised funds directly support their work at a time when rare disease research funding remains limited and highly competitive.
In the weeks ahead, we will share campaign materials, fundraising tools, and examples from community members who have led successful campaigns to help you prepare.
Whether you launch a peer-to-peer fundraiser or make a direct gift, your contribution directly supports the research advancing cancer prevention and early intervention for individuals with RUNX1-FPD.
RRP Patient Webinar:
“Can Dietary Changes Reduce Blood Cancer Risk?”
Thursday, April 2nd, 2026
9 a.m. PT • 12 p.m. ET
5 p.m. BST
As part of the April X-Out Blood Cancer campaign kickoff, Urvi Shah, MD, a blood cancer specialist at Memorial Sloan Kettering Cancer Center, will discuss nutrition, inflammation, and long-term blood health.
Dr. Shah has studied how dietary patterns may influence inflammation and blood cancer risk in conditions associated with an increased risk of developing blood cancer. Her research offers perspective on how nutrition may play a role in slowing progression to blood cancer.
OurRUNX1 Insight Dropsare highlights drawn directly from patient-reported health experiences captured in the RUNX1 Patient Data Hub.
These insights include both questions raised by patients and data on well-established features of RUNX1-FPD, helping us better understand how this condition affects individuals across our community.
Current topics include fatigue in adults, ear and hearing–related issues, numbness and tingling in the extremities, digestive system concerns, and spinal pain or discomfort.
Explore the latest Insight Drops below to see what we’re learning from shared patient experiences.
Wondering how to talk to extended family about RUNX1-FPD?
In our latest blog, Caitlin Shirts of ConnectMyVariant shares clear, practical strategies for sharing medical history concerning familial disorders like RUNX1-FPD with care, and highlights resources (like our customizable Family Letter) to help you get started.
RUNX1-FPD patients and their families are invited to join us in Atlanta for the 2026 RUNX1 Patient Meeting.
Connect with other families, hear the latest research updates, and participate in interactive sessions designed for patients and caregivers. A dedicated Kids Room will be available for all attendees under 18.
There is no registration fee, and RRP covers travel, lodging, and meals for individuals with RUNX1-FPD, their children, and one close family member.
Click below to register and view the proposed agenda. We hope to see you there!
RRP is sponsoring a clinical research study at both MD Anderson Cancer Center (MDACC) and Children’s Hospital of Philadelphia (CHOP) to evaluate the safety and feasibility of collecting and banking blood stem cells from individuals with RUNX1-FPD.
The study teams believe this procedure could benefit participating patients in the future should gene-editing technology improve. With more advanced technology than currently available, the RUNX1 variants in these stored cells could be corrected, enabling patients to improve their health using their own cells.
Both locations are open for enrollment, so please click below to learn more and consider joining this important opportunity!
As part of our ongoing commitment to education and awareness, we hosted a medical education webinar this month focused on the germline origins of pediatric hematologic malignancies. The session provided practical guidance on identifying, managing, and referring children with potential blood cancer predisposition syndromes.
The webinar featured a presentation by Serine Avagyan, MD, PhD (University of California, San Francisco), who was joined for a Q&A session by Jessica Pollard, MD (Dana-Farber/Boston Children’s Cancer and Blood Disorders Center) and genetic counselor Sara Torres-Esquius, MS, CGC (Vall d’Hebron Institute of Oncology - Barcelona).
Regular ticket pricing for the 10th Annual RUNX1 Scientific Conference ends Wednesday, March 4, and late registration pricing will begin. Review the agenda and register* on our website today before rates increase.
The 2026 theme, “Catalyzing Change: The Next Chapter in RUNX1,” highlights our shared commitment to advancing discovery and improving outcomes for individuals affected by RUNX1-FPD.
*If you are a current RRP grantee or Scientific Advisory Board (SAB) member, please contact Catherine Pelton at cpelton@runx1-fpd.org for a registration promo code.
Applications for the LEAP Grant Program
RRP has partnered with the American Cancer Society to make the Leukemia Exploration and Prevention (LEAP) Grant Program available to support innovative research in blood cancer prevention and interception for individuals with RUNX1-FPD.
Full-time investigators at U.S. academic institutions or eligible non-profits are invited to apply.
