As 2025 comes to a close, we want to share how grateful we are to the RUNX1-FPD community for the shared commitment and support that drives progress forward.
This month’s newsletter includes a year-end campaign update, community highlights, and information about upcoming meetings and events in 2026.
Happy New Year from the RRP team! |
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| Navigating New Frontiers: The Journey Continues |
With just two days remaining in 2025, there is still time to participate in our year-end awareness campaign to support individuals with RUNX1-FPD and their families.
When we come together as a community, gifts of any size can make a meaningful difference. 100% of every donation directly supports research acceleration and patient education.
We invite you to make a gift of any amount before December 31 to help ensure this work continues into the year ahead. Together, we’re navigating new frontiers, one act of generosity at a time. |
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Medical Education Webinar: “Recognizing Pediatric Hereditary Hematologic Malignancies” Wednesday, February 11, 2026 8 a.m. PT | 11 a.m. ET | 4 p.m. GMT |
Recognizing inherited predispositions in children with hematologic malignancies can significantly influence evaluation, treatment decisions, and family counseling. This webinar will explore the germline origins of pediatric hematologic malignancies and offer practical guidance for identifying, managing, and referring children with potential hereditary hematologic conditions.
The session will feature a presentation by Serine Avagyan, MD, PhD (UCSF), who will be joined afterwards for a Q&A with Jessica Pollard, MD (Dana-Farber/Boston Children's Cancer and Blood Disorders Center) and genetic counselor Sara Torres-Esquius, MS, CGC (Vall d'Hebron Institute of Oncology - Barcelona). |
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Dr. Nancy Speck Recognized with E. Donnall Thomas Prize |
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We are thrilled to share that Dr. Nancy Speck, Chair of RRP’s Scientific Advisory Board, was recently honored with the 2025 E. Donnall Thomas Lecture and Prize, one of the highest recognitions in hematology. Dr. Speck received the award and delivered the accompanying lecture at the American Society of Hematology Annual Meeting earlier this month.
The E. Donnall Thomas Prize recognizes scientific achievements that have fundamentally advanced the understanding of blood diseases. Over her four-decade career, Dr. Speck’s research has shaped scientists' understanding of embryonic blood development, leukemia biology, and the mechanisms underlying RUNX1-FPD pathology. We are deeply grateful for her leadership and for the expertise she brings to our community. |
Please join us in congratulating Dr. Speck on this outstanding achievement! |
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RUNX1-FPD patients and their families are invited to join us in Atlanta next spring for the 2026 RUNX1 Patient Meeting.
There is no registration fee, and RRP covers travel, lodging, and meals for individuals with RUNX1-FPD, all children traveling with them, and one close family member.
We welcome both children with RUNX1-FPD and those without to join us and participate. We hope to see you there! |
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Join Us for the January Patient & Family Coffee Chat Thursday, January 29th, 2026
9 a.m. PT | 12 p.m. ET | 5 p.m. GMT |
We invite individuals with RUNX1-FPD and their family members to join us in January 2026 for our first RUNX1 Patient & Family Coffee Chat of the year.
These informal virtual gatherings offer a relaxed space to connect with others who understand the RUNX1-FPD journey, whether you’d like to share experiences, ask questions, or simply listen.
All you need to join is a computer, tablet, or phone with a camera, microphone, and internet access. |
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Please register* to join us in Atlanta, Georgia, for the 10th Annual RUNX1 Scientific Conference. The conference will feature plenary talks, collaborative breakout sessions, and poster sessions dedicated to graduate and postdoctoral student researchers.
Attendees will gain access to the latest findings, forge new research partnerships, and help shape the future of RUNX1-FPD science. |
*If you are a current RRP grantee or SAB member, please contact Catherine Pelton at cpelton@runx1-fpd.org for a registration promo code. |
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Stay current with the latest peer-reviewed studies in RUNX1-FPD science and clinical research!
The RUNX1 Radar tracks and shares newly published findings from across the field, including work from RRP-funded investigators and leading researchers worldwide.
Explore recent research articles in Science Translational Medicine, Blood Advances, The Journal of Clinical Investigation, and more. |
If you have recently published a paper related to RUNX1, please email a link to Dr. Katrin Ericson to include it in the next update. |
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None of the news you just read is possible without support from our generous donors. Please consider a gift of any size today. RRP commits 100% of direct donations to fund research and educational programs. |
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