Get the Facts
Deciding whether to pursue a stem cell transplant is deeply personal and often complex. You may feel ready to weigh the risks and benefits yourself, or you may prefer to lean on your medical team’s recommendation. This information is here to help you understand the considerations involved, so you can have a thoughtful, informed conversation with your doctor about what feels right for you.
Your options:
• Move forward with a stem cell transplant
• Continue close monitoring and supportive care without transplant at this time
This desicion aid is for RUNX1-FPD patients…
Frequently Asked Questions
-
Developing a blood cancer is a complicated process and won’t happen in every person with RUNX1-FPD (35-50% of people will develop a blood cancer). Scientists have learned that the patients who develop blood cancer collect new cancer-causing variants in their blood cells, called somatic (or “acquired”) variants which are new changes (mutations) in your genes that happen over time.
What is unique is that people with RUNX1-FPD seem to get these additional variants faster than people without a RUNX1 variant. Scientists are studying which of these additional variants are the most dangerous and signal that a RUNX1-FPD patient may be developing a blood cancer. It is complicated because all humans collect new variants in our blood over time, we don’t know which variants will cause cancer. Learn more about those research studies here.
-
Description text goes here
-
Description text goes here
-
Description text goes here