What Matters Most to You
Your thoughts and feelings are just as important as the medical information. Take a moment to reflect on what matters most to you, and indicate how you feel about the statements below. (EXAMPLE IS EMBEDDED TEMPLATE THAT IS FREE, for up to 25 respondents per month)
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The questions in this section are designed to help you reflect on your personal priorities when thinking about transplant or continued monitoring. This type of exercise is called a values clarification activity, which is commonly used in healthcare decision aids to help people think through complex medical choices.
Related Clinical Evidence
The medical considerations referenced in the questions, such as leukemia risk, monitoring strategies, and stem cell transplantation, are based on the research summarized in the paper:
“Preemptive hematopoietic stem cell transplantation in RUNX1 familial platelet disorder: a shared decision-making framework”
Haematologica (manuscript under review).