The Research Guided by Patients Committee consists of patients, family members, caregivers, researchers and clinicians focused on including diverse RUNX1-FPD patients’ perspectives and preferences with respect to research, education, advocacy and awareness initiatives for the RUNX1-FPD community. 

Patients and family members are always welcome to join RGPC meetings, and the group is always open to new members. If you have an interest in learning more about the RGPC and how to get involved, please contact Amanda Eggen.

RRP is grateful to the Patient-Centered Outcomes Research Institute (PCORI) for offering a Eugene Washington Engagement Award from 2020-2021 that supported the formation of this key advisory body.

Click on the pictures below to read committee member’s bios.

  • Georgie Blackburn

  • Steve Berg

  • Charles Blackburn

  • Dr. Uma Borate

  • Dr. Alan B. Cantor

  • Dr. Lucio Castilla

  • Michael Conlon

  • Julia Cooper

  • Sean Cryan

  • Daphne Goldsmith

  • Kayla Hamilton

  • Rebekah Hays

  • Emely Hodgins

  • Kay Iversen

  • Doug Lanter

  • Sarah Lodge

  • Shira Zwiren