RUNX1 INSIGHT DROPS
RUNX1 Insight Drops share small, focused findings from the RUNX1 Patient Data Hub (the “Data Hub”).
The Data Hub gathers information directly from individuals living with RUNX1-FPD about a wide range of health experiences, including both well-established features of RUNX1-FPD and experiences that may or may not be directly related.
Many questions included in the Data Hub came directly from patients who asked: “I wonder if this could be connected to my RUNX1 variant?”
By collecting this information, we can begin to explore these questions, identify shared experiences, and highlight areas that scientists may be able to study more deeply through future research. At the same time, the Data Hub tracks foundational features of RUNX1-FPD, such as low platelet counts, easy bruising, gum and nose bleeding, and platelet function defects, which are supported by peer-reviewed research.
Together, these data help us build the most complete picture possible of life with RUNX1-FPD.
Below, you’ll find individual Insight Drops. Each card can be opened to view a specific insight from the Data Hub.
Want to learn more about how Insight Drops are created and how to interpret them? Read our introduction to RUNX1 Insight Drops Blog Article here: