Agenda Coming Soon!

Join the RUNX1 community online for a day of research updates, conversation, and connection.

Katrin Ericson, PhD, and Nancy Speck, PhD, will explain key research findings from the past year and discuss what the research could mean for patients and families. We are also planning smaller breakout conversations about topics relevant to people’s day-to-day lives, along with new opportunities to connect with the teams leading studies in our community.

The full agenda will come together over the next several months. If there is something you would like us to include, email Amanda Eggen at aeggen@runx1-fpd.org. Input from patients and families has helped shape every Patient Meeting we have held.

You are welcome to join only the sessions that matter to you. Please register even if you cannot attend the entire day. Most presentations will be recorded, and everyone who registers will receive the recordings afterward. Breakout conversations will not be recorded.

There is no cost to attend. This is a safe, supportive space created specifically for individuals and families with RUNX1-FPD to talk openly, ask questions, and connect with others who understand.