(This video includes only the second half of our April 25, 2025, webinar, featuring three patients currently taking sirolimus sharing their experiences. To watch the full session or Dr. DiNardo’s research presentation, see the links below.)

In the second half of this webinar, three individuals currently taking sirolimus share their personal experiences.

Topics covered include:

• Real-world experiences with sirolimus treatment

• Side effects, quality of life changes, and lessons learned

• Live Q&A session with audience questions

This session offers valuable insights for patients and families considering clinical trial participation or exploring sirolimus as a potential treatment option.

Full video: https://youtu.be/rH-niYhREuI

Part 1 (Dr. DiNardo only): https://youtu.be/f9IP9Xq4-nQ