RUNX1-FPD and NIH Study Intro

This recording of a RUNX1 Research Program-hosted webinar that was delivered on July 9, 2020.

Lead NIH RUNX1 clinic team members review RUNX1-FPD biology in health & disease, describe their germline RUNX1 clinical study protocol, review genetics and results to date, and describe their approach to monitoring and treatment as indicated.

The intended audience is patients not currently enrolled in the NIH RUNX1-FPD Clinical Research (Natural History) Study, and clinicians who might care for patients with RUNX1-FPD. Patients and clinicians already involved in the study may find value in the findings to date presented as well.

A FAQ and Q&A included at the end address common questions from patients.

Speakers:

  • Paul P. Liu, MD, PhD, Senior Investigator

  • Lea Cunningham, MD, Medical Director

  • Matt Merguerian, MD, PhD, Clinical Fellow

  • Natalie Deuitch, MS, CGC, Genetic Counselor

Click here to read more about the study.

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