RRP Patient Story: Virginia Monk

Virginia Monk shares how RUNX1 Familial Platelet Disorder (RUNX1-FPD), an inherited blood disorder that raises the risk of developing leukemia and other blood cancers, has shaped her family’s story. She reflects on the loss of her son Gabriel, who inherited the condition and later developed leukemia, and her own recent diagnosis of myelodysplastic syndrome (MDS). Despite these challenges, she emphasizes the role of hope, research, and daily rituals in helping her live fully each day.

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Part 1: April 2025 Low-Dose Sirolimus Study Overview with Dr. Courtney DiNardo