A diagnosis raises a lot of questions about: staying safe, raising a family, carrying the emotional weight of cancer risk, and simply getting on with life. 

This page walks through a few of the questions families ask most often (many of which are on this page and in our FAQ), and points you to the tools and resources across our site that can help. It isn't medical advice, because everyone with RUNX1-FPD is different, but it can help you know where to begin.

Please take a look at our patient and family resources here which includes information you can share with your medical team.